懷念天送!支持器官捐贈! Miss You, Tim! Support Organ Donation!: 懷念天送!支持器官捐贈!

2009年5月19日星期二

懷念天送!支持器官捐贈!

昨天在看天送一個劇本功課，劇本的內容其實就是他自己的寫照，他提到：「想成為一個有用的人，可惜我仲未做得到，自覺很是失敗......」我想 23歲的他，患紫質症引致肝衰竭，最後因等不到合適的肝臟而離世是一件很不幸的事情，但我希望值著天送的故事，能令香港社會產生一個回響，「希望香港市民明白死後捐贈器官可以重燃別人的生命，讓器官衰竭的病者的生命得以延續」。天送的軀體雖然離開，但他的精神長存，他的故事和他的「面對病魔，永不放棄」的精神會轉化成推動死後器官捐贈的力量，去幫助跟他同病相憐的病友！這亦算天送為社會作出少許的貢獻，完成他的遺願 - 「成為一個有用的人」。

我會把「救救天送! 」的網改為「懷念天送!支持器官捐贈! 」，並在facebook上建立「懷念天送!支持器官捐贈! 」的群組，希望利用這個網上的平台讓更多的香港市民認識紫質症及推動死後器官捐贈的訊息，盼望著香港能全民支持器官捐贈，讓在器官輪候冊上2000多名的病人能及早得到重生的機會，令在輪候冊上的病人數目盡快減少。

我們的網站將會提供以下的知訊：

死後器官捐贈的有關質料和登記方法
最近有關器官捐贈的新聞或報道，並為急需器官移植病人作出呼籲
最新的「中央器官捐贈登記名冊」和「器官輪候冊」的數目
曾作為急需肝髒移植病人的家屬，我很明白病人和其家屬所受疾病的折磨及痛苦，如需要幫助，請電郵本人。
電郵 :missutim@gmail.com

未來的日子，我希望一直有留意「救救天送! 」網站的朋友，繼續支持我們的網站以外，並向你身邊的家人朋友傳播死後器官捐贈的訊息，讓大家明白讓大家明白死後器官捐贈的重要性，可以為不幸的人士和家庭帶來重生的希望，讓香港成為一個仁愛的社會。

Catherine敬上

4 則留言:

miladysdiary2009年5月19日清晨6:43
支持你。我也会支持马来西亚的器官捐赠活动。
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Olivia2009年5月19日清晨6:57
加油! 支持你呀!!
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Unknown2009年5月19日上午10:00
This is a very meaningful thing to do. I am already a registered organ donor (all organs) but hopefully a lot more people will follow suit. I am sorry that this had ever happened to you but I am sure Tin Sung will make an impact.
Please say farewell to Tin Sung for me as I am not in Hongkong right now hence I can't do it in person. Oh, also, I think he is quite handsome and stylish（有型）. Please tell him that as well.
Please take good care of yourselves. I'll continue to pray for Tin Sung, his family and friends.
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Unknown2009年5月19日下午1:07
Support you all the time.
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新增留言

THE ONLY WAY TO SAFE HIS LIFE - A LIVER TRANSPLANT!

Dear all,

My brother, Tim Chan Tin-Sung, 23 year old, was diagnosed with Erythropoietic Protoprophyria (EPP) at the age of 20. It is a rare genetic disease characterized by photosensitivity. As a child, whenever he got home after an outing, his face, ears and hands swelled up. He had a burning pain all over his body, too. When my parents took him to the family doctors, they all said he was allergic to the soil or pollen. In September 2006, after he had a severe reaction and abdominal pain, he stayed in the hospital for 4 months and he was finally diagnosed with EPP.

EPP is due to an inherited deficiency of the enzyme ferrochelatase. Reduced activity of this enzyme causes a build-up of porphyrins accumulating in the liver. Large amounts of toxic porphyrins has caused rapid deterioration of his liver function leading to liver failure; which my brother has.

Tim has not been feeling well since November 2006. He lost his appetite and had severe abdominal pain and diarrhea. His mobility was gradually decreasing so that he had to stop his study. By the end of March this year his condition got worse. We went to Queen Mary Hospital on March 26 and he has been in the hospital now for one month. He is now in the Intensive Care Unit (ICU) of the hospital and is waiting for a hope for liver transplantation. His liver no longer functions. Aside from his severe liver failure, he has acquired pneumonia since a week after being in the hospital. His lungs are very weak now and breathing is assisted by an ventilator.

The underlying cause of my brother's disease is related to the bone marrow. A hematopoietic stem cell transplant (a bone marrow transplant) is necessarily to be done shortly after his liver transplantation. Liver transplant is of the utmost importance for now. As a family, we all are willing to do the live donation for him but unfortunately none of our livers is a proper match. Tim is in desperate need of a liver transplant! If you are willing to help this 23-year-old young man and donate part of your liver to him, please contact us at savingtim@gmail.com. Your decision could save the life of this young man and let him live with his family!

Tim's sister
Catherine

懷念天送!支持器官捐贈! Miss You, Tim! Support Organ Donation!

2009年5月19日星期二