今天１１時半左右，ＩＣＵ姑娘打電話通知我有關昨晚腦素描的結果：「天送腦力面的瘀血比星期五的時候細左Ｄ，希望瘀血可以慢慢融化，我們會一星期後再幫他做腦素描。」
今晚到醫院去看天送的時候，他眼睛一直是睜開的，希望是一個好兆頭，希望瘀血真的慢慢融化，我也告訴他腦素描的情況，希望起鼓勵作用。
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關於天送 About Tim
- Saving Tim via Liver Transplantation
- 陳天送，２３歲，血型是Ｂ＋，喜歡攝影及電腦設計，曾就讀於ＣＩＴＹＵ及ＩＶＥ，因患上極罕見的遺傳病－紫質病，而迫使停學，於５月1３日病逝。 Tim Chan, 23 year old, loves photography and digital media design. He studied in City University of Hong Kong and Institute of Vocational Education (Kwun Tong). Due to the outbreak of his rare disease - Erythropoietic Protoprophyria (EPP), he stopped his study twice. He passed away on May 13.
器官捐贈的有關質料 About Organ Donation
病症相關資料 Useful Links to the Diseases
THE ONLY WAY TO SAFE HIS LIFE - A LIVER TRANSPLANT!
Dear all,
My brother, Tim Chan Tin-Sung, 23 year old, was diagnosed with Erythropoietic Protoprophyria (EPP) at the age of 20. It is a rare genetic disease characterized by photosensitivity. As a child, whenever he got home after an outing, his face, ears and hands swelled up. He had a burning pain all over his body, too. When my parents took him to the family doctors, they all said he was allergic to the soil or pollen. In September 2006, after he had a severe reaction and abdominal pain, he stayed in the hospital for 4 months and he was finally diagnosed with EPP.
EPP is due to an inherited deficiency of the enzyme ferrochelatase. Reduced activity of this enzyme causes a build-up of porphyrins accumulating in the liver. Large amounts of toxic porphyrins has caused rapid deterioration of his liver function leading to liver failure; which my brother has.
Tim has not been feeling well since November 2006. He lost his appetite and had severe abdominal pain and diarrhea. His mobility was gradually decreasing so that he had to stop his study. By the end of March this year his condition got worse. We went to Queen Mary Hospital on March 26 and he has been in the hospital now for one month. He is now in the Intensive Care Unit (ICU) of the hospital and is waiting for a hope for liver transplantation. His liver no longer functions. Aside from his severe liver failure, he has acquired pneumonia since a week after being in the hospital. His lungs are very weak now and breathing is assisted by an ventilator.
The underlying cause of my brother's disease is related to the bone marrow. A hematopoietic stem cell transplant (a bone marrow transplant) is necessarily to be done shortly after his liver transplantation. Liver transplant is of the utmost importance for now. As a family, we all are willing to do the live donation for him but unfortunately none of our livers is a proper match. Tim is in desperate need of a liver transplant! If you are willing to help this 23-year-old young man and donate part of your liver to him, please contact us at savingtim@gmail.com. Your decision could save the life of this young man and let him live with his family!
Tim's sister
Catherine
My brother, Tim Chan Tin-Sung, 23 year old, was diagnosed with Erythropoietic Protoprophyria (EPP) at the age of 20. It is a rare genetic disease characterized by photosensitivity. As a child, whenever he got home after an outing, his face, ears and hands swelled up. He had a burning pain all over his body, too. When my parents took him to the family doctors, they all said he was allergic to the soil or pollen. In September 2006, after he had a severe reaction and abdominal pain, he stayed in the hospital for 4 months and he was finally diagnosed with EPP.
EPP is due to an inherited deficiency of the enzyme ferrochelatase. Reduced activity of this enzyme causes a build-up of porphyrins accumulating in the liver. Large amounts of toxic porphyrins has caused rapid deterioration of his liver function leading to liver failure; which my brother has.
Tim has not been feeling well since November 2006. He lost his appetite and had severe abdominal pain and diarrhea. His mobility was gradually decreasing so that he had to stop his study. By the end of March this year his condition got worse. We went to Queen Mary Hospital on March 26 and he has been in the hospital now for one month. He is now in the Intensive Care Unit (ICU) of the hospital and is waiting for a hope for liver transplantation. His liver no longer functions. Aside from his severe liver failure, he has acquired pneumonia since a week after being in the hospital. His lungs are very weak now and breathing is assisted by an ventilator.
The underlying cause of my brother's disease is related to the bone marrow. A hematopoietic stem cell transplant (a bone marrow transplant) is necessarily to be done shortly after his liver transplantation. Liver transplant is of the utmost importance for now. As a family, we all are willing to do the live donation for him but unfortunately none of our livers is a proper match. Tim is in desperate need of a liver transplant! If you are willing to help this 23-year-old young man and donate part of your liver to him, please contact us at savingtim@gmail.com. Your decision could save the life of this young man and let him live with his family!
Tim's sister
Catherine
Health Criteria of Living Donor
No long-term drug taken
No other chronic illness, including psychological illness
No hepatitis
Blood type : B+ or O+
Age: 18 - 50
Can afford 6-8 week sick leave from work
Must gain support from family e.g. parent, wife/husband, etc (because they need to sign a consent)
Must fully understand the liver transplant operation and the potential risk
加油哦，如果我在香港，我也很想到医院为天送打气。我很开心知道天送好一点了，加油！！！
回覆刪除你好, 我叫 Bianca, 我是從報中得知天送的事, 打從五号起我每天都會上你的Blog得知他的近況。想過Liver Transplant, 可惜我的血型是A+, 幫不上忙。只可望每天看到你的Blog的時後會有好消息。今天finally等到了,我的心情也好了不小。希望天送和你們也加油,一起度過！
回覆刪除我是住在Hawaii的, 如有什麼我可幫上, 請告知, 我的e-mail是QtAnGeL121@hawaii.rr.com.
祝天送快D recover. 可做Liver Transplant Surgery.
Bianca上
繼續為你們打氣!
回覆刪除繼續加油呀!!
回覆刪除明天會更好!!
Add oil... don't give up! God bless you!
回覆刪除Parts from "神有正面答案"
你說：「那是不可能的。」
上帝說：「在人所不能的事，在神卻能。」(路 18:27)
你說：「我累了。」
上帝說：「我讓你休息。」(太11:28-30)
你說：「我做不下去了。」
上帝說：「我的恩典夠你支持下去。」(林後 12:9 & 詩 91:15)
你說：「我做不到。」
上帝說：「你什麼都做得到。」(腓 4:13)
你說：「我害怕。」
上帝說：「我並沒有給你一個恐懼的靈。」 (提後 1:7)
你說：「我常常在擔憂、受挫。」
上帝說：「放下你的重擔，我為你承擔。」 (彼後 5:7)
你說：「我是孤單的。」
上帝說：「我永遠不會捨棄你的。」 (來 13:5)