訂閱：
張貼留言 (Atom)
skip to main |
skip to sidebar
關於天送 About Tim
- Saving Tim via Liver Transplantation
- 陳天送，２３歲，血型是Ｂ＋，喜歡攝影及電腦設計，曾就讀於ＣＩＴＹＵ及ＩＶＥ，因患上極罕見的遺傳病－紫質病，而迫使停學，於５月1３日病逝。 Tim Chan, 23 year old, loves photography and digital media design. He studied in City University of Hong Kong and Institute of Vocational Education (Kwun Tong). Due to the outbreak of his rare disease - Erythropoietic Protoprophyria (EPP), he stopped his study twice. He passed away on May 13.
器官捐贈的有關質料 About Organ Donation
病症相關資料 Useful Links to the Diseases
THE ONLY WAY TO SAFE HIS LIFE - A LIVER TRANSPLANT!
Dear all,
My brother, Tim Chan Tin-Sung, 23 year old, was diagnosed with Erythropoietic Protoprophyria (EPP) at the age of 20. It is a rare genetic disease characterized by photosensitivity. As a child, whenever he got home after an outing, his face, ears and hands swelled up. He had a burning pain all over his body, too. When my parents took him to the family doctors, they all said he was allergic to the soil or pollen. In September 2006, after he had a severe reaction and abdominal pain, he stayed in the hospital for 4 months and he was finally diagnosed with EPP.
EPP is due to an inherited deficiency of the enzyme ferrochelatase. Reduced activity of this enzyme causes a build-up of porphyrins accumulating in the liver. Large amounts of toxic porphyrins has caused rapid deterioration of his liver function leading to liver failure; which my brother has.
Tim has not been feeling well since November 2006. He lost his appetite and had severe abdominal pain and diarrhea. His mobility was gradually decreasing so that he had to stop his study. By the end of March this year his condition got worse. We went to Queen Mary Hospital on March 26 and he has been in the hospital now for one month. He is now in the Intensive Care Unit (ICU) of the hospital and is waiting for a hope for liver transplantation. His liver no longer functions. Aside from his severe liver failure, he has acquired pneumonia since a week after being in the hospital. His lungs are very weak now and breathing is assisted by an ventilator.
The underlying cause of my brother's disease is related to the bone marrow. A hematopoietic stem cell transplant (a bone marrow transplant) is necessarily to be done shortly after his liver transplantation. Liver transplant is of the utmost importance for now. As a family, we all are willing to do the live donation for him but unfortunately none of our livers is a proper match. Tim is in desperate need of a liver transplant! If you are willing to help this 23-year-old young man and donate part of your liver to him, please contact us at savingtim@gmail.com. Your decision could save the life of this young man and let him live with his family!
Tim's sister
Catherine
My brother, Tim Chan Tin-Sung, 23 year old, was diagnosed with Erythropoietic Protoprophyria (EPP) at the age of 20. It is a rare genetic disease characterized by photosensitivity. As a child, whenever he got home after an outing, his face, ears and hands swelled up. He had a burning pain all over his body, too. When my parents took him to the family doctors, they all said he was allergic to the soil or pollen. In September 2006, after he had a severe reaction and abdominal pain, he stayed in the hospital for 4 months and he was finally diagnosed with EPP.
EPP is due to an inherited deficiency of the enzyme ferrochelatase. Reduced activity of this enzyme causes a build-up of porphyrins accumulating in the liver. Large amounts of toxic porphyrins has caused rapid deterioration of his liver function leading to liver failure; which my brother has.
Tim has not been feeling well since November 2006. He lost his appetite and had severe abdominal pain and diarrhea. His mobility was gradually decreasing so that he had to stop his study. By the end of March this year his condition got worse. We went to Queen Mary Hospital on March 26 and he has been in the hospital now for one month. He is now in the Intensive Care Unit (ICU) of the hospital and is waiting for a hope for liver transplantation. His liver no longer functions. Aside from his severe liver failure, he has acquired pneumonia since a week after being in the hospital. His lungs are very weak now and breathing is assisted by an ventilator.
The underlying cause of my brother's disease is related to the bone marrow. A hematopoietic stem cell transplant (a bone marrow transplant) is necessarily to be done shortly after his liver transplantation. Liver transplant is of the utmost importance for now. As a family, we all are willing to do the live donation for him but unfortunately none of our livers is a proper match. Tim is in desperate need of a liver transplant! If you are willing to help this 23-year-old young man and donate part of your liver to him, please contact us at savingtim@gmail.com. Your decision could save the life of this young man and let him live with his family!
Tim's sister
Catherine
Health Criteria of Living Donor
No long-term drug taken
No other chronic illness, including psychological illness
No hepatitis
Blood type : B+ or O+
Age: 18 - 50
Can afford 6-8 week sick leave from work
Must gain support from family e.g. parent, wife/husband, etc (because they need to sign a consent)
Must fully understand the liver transplant operation and the potential risk
I've been following your blog since I read the news article asking for liver donation on yahoo. Since then I've been praying for Tim and the family. I was so moved by your braveness and the love you and your family have given to Tim that to be honest I have thought about donating 'cos I am a B+ and I lost my father to liver cancer a couple of years ago because he waited too long for a transplant so I am totally with you. But first my family thinks I am totally crazy and refrains me from doing so and second from your description about internal bleeding I doubt he would be able to make it. So I went to bed and pretended I knew nothing about it and that God would take care of the matter. I hope you do believe in God and that Tim is now in his great care. I hope you can understand that Tim is very lucky to have a sister like you and the prolonged length of life is not as important as the quality of life. This outcome which seems the most heartbreaking right now may not be the worst outcome for the all of you if you look back in a few years' time. Last I will pray for Tim Chan Tin-Sung, his very brave and loving sister Catherine and family. All the best.
回覆刪除I'm so sorry about your brother, ah Yan. I wish you and your family all the best, and your brother will rest in peace.
回覆刪除願天送主懷安息...
回覆刪除May God bless you all.
R.I.P
回覆刪除願主保祐安息..
回覆刪除希望天送係天堂可以快快樂樂地生活吧!!!
天送，
回覆刪除此刻你走了，告別了受盡病魔煎熬得軀體，告別了家人、親友，和一群素未謀面卻一直為你打氣的朋友。你雖然年輕，生命雖然短暫，但你不用感到遺憾，因為家人對你的愛令你的人生變得豐盛。
天送，
就讓你擁抱著滿懷的關愛走進天國去吧。
祝安息
永遠懷念你
Sylvia Chan
I am shocked and sadden by what I read in the news about Tim's passing. Please receive my most sincere condolence. I have been thinking about Tim and your family since April when the news of Tim first emerged. I visit your blog from time to time and have left Tim and family my blessings in response to your first post, hoping for good news from then on. I thought there would be a happy ending when Tim got better from pneumonia. But I guess God knows better and has a big, more appropriate plan for Tim. I have no doubt Tim is now healthy and happy, being his old self again at home with God. His short, yet meaningful life on Earth is not in vain. Tim, we will be thinking of you!
回覆刪除Tim's family, please take good care of yourselves. Know that you have my support and good wishes all the way. I have every respect for the unconditional love you have shown, the amazing unity you have demonstrated, and courage you have exemplified in the face of adversity. Thank you for showing us what it means to be a loving family.
Allow me to give each of you a virtual hug. Tim, 一路好走！
一個香港人