自從聽到細佬腦中風的消息後，我心裡面一直非常不安，我可以做的是去找有關腦中風的質料來看，但是看得越多，擔憂就越多。最後，我決定去約見醫生，了解天送最新的情況，晚上六時，我們一家到深切治療部病房等著，我和爸爸先去看天送，天送沒有睜開眼來看我，但是我在他身邊說話，他是有反應的，我跟他說今天是母情節，我和妹妹買了一個銀包給媽媽，回想差不多十年前，我們三姐弟一起也買過一個銀包給媽媽，媽媽用著它一直到現在，我跟他說：「媽媽說這個銀包是你有分送給她的，她會一直用下去，留在身邊。」
醫生到了，他把細佬今天肺部的X-Ray拿出來看，我看到左邊肺是白朦朦的，我對自己說：「這不是細佬的X-Ray」，希望能換取一刻心靈上的安靜。媽媽也走到病房見醫生，我們三人站著聽醫生說：「天送的情況，我想你們一家都應該很清楚，其實它的身體都是一路差緊，不單只是肝差，其他的器官都有毛病，他的肺功能亦衰弱，他現在要靠呼吸機來幫他呼吸，但是呼吸機只能給他氧氣，不能代替肺部的功能，比如他肺裡面有積水跟痰，要靠他自己的肺功能才可以咳出來，但是他也做不到，這證明它的肺很差。呼吸機幫不道他這方面，我們等一下幫他做一個氣管鏡，把他肺裡面的積水跟痰抽出來。至于腦的瘀血，沒有變大，但我們擔心如果有更多的器官出現問題的時候，就算有機器的幫助，我怕我們能做得也有限。我們現在只能幫天送解決當前求生的問題，置於肝臟移植手術，他現在的身體，根本不能支持這個手術。」
我們聽完後，淚水一直往下流，正如何姑娘所說，我們已經盡力，現在要靠天送的意志去面對前面的病魔，我們一家祈盼上天給天送一個病情逆轉的機會，讓他可以跟我們一起活下去！細佬，我們每一個人都很愛你！
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關於天送 About Tim
- Saving Tim via Liver Transplantation
- 陳天送，２３歲，血型是Ｂ＋，喜歡攝影及電腦設計，曾就讀於ＣＩＴＹＵ及ＩＶＥ，因患上極罕見的遺傳病－紫質病，而迫使停學，於５月1３日病逝。 Tim Chan, 23 year old, loves photography and digital media design. He studied in City University of Hong Kong and Institute of Vocational Education (Kwun Tong). Due to the outbreak of his rare disease - Erythropoietic Protoprophyria (EPP), he stopped his study twice. He passed away on May 13.
器官捐贈的有關質料 About Organ Donation
病症相關資料 Useful Links to the Diseases
THE ONLY WAY TO SAFE HIS LIFE - A LIVER TRANSPLANT!
Dear all,
My brother, Tim Chan Tin-Sung, 23 year old, was diagnosed with Erythropoietic Protoprophyria (EPP) at the age of 20. It is a rare genetic disease characterized by photosensitivity. As a child, whenever he got home after an outing, his face, ears and hands swelled up. He had a burning pain all over his body, too. When my parents took him to the family doctors, they all said he was allergic to the soil or pollen. In September 2006, after he had a severe reaction and abdominal pain, he stayed in the hospital for 4 months and he was finally diagnosed with EPP.
EPP is due to an inherited deficiency of the enzyme ferrochelatase. Reduced activity of this enzyme causes a build-up of porphyrins accumulating in the liver. Large amounts of toxic porphyrins has caused rapid deterioration of his liver function leading to liver failure; which my brother has.
Tim has not been feeling well since November 2006. He lost his appetite and had severe abdominal pain and diarrhea. His mobility was gradually decreasing so that he had to stop his study. By the end of March this year his condition got worse. We went to Queen Mary Hospital on March 26 and he has been in the hospital now for one month. He is now in the Intensive Care Unit (ICU) of the hospital and is waiting for a hope for liver transplantation. His liver no longer functions. Aside from his severe liver failure, he has acquired pneumonia since a week after being in the hospital. His lungs are very weak now and breathing is assisted by an ventilator.
The underlying cause of my brother's disease is related to the bone marrow. A hematopoietic stem cell transplant (a bone marrow transplant) is necessarily to be done shortly after his liver transplantation. Liver transplant is of the utmost importance for now. As a family, we all are willing to do the live donation for him but unfortunately none of our livers is a proper match. Tim is in desperate need of a liver transplant! If you are willing to help this 23-year-old young man and donate part of your liver to him, please contact us at savingtim@gmail.com. Your decision could save the life of this young man and let him live with his family!
Tim's sister
Catherine
My brother, Tim Chan Tin-Sung, 23 year old, was diagnosed with Erythropoietic Protoprophyria (EPP) at the age of 20. It is a rare genetic disease characterized by photosensitivity. As a child, whenever he got home after an outing, his face, ears and hands swelled up. He had a burning pain all over his body, too. When my parents took him to the family doctors, they all said he was allergic to the soil or pollen. In September 2006, after he had a severe reaction and abdominal pain, he stayed in the hospital for 4 months and he was finally diagnosed with EPP.
EPP is due to an inherited deficiency of the enzyme ferrochelatase. Reduced activity of this enzyme causes a build-up of porphyrins accumulating in the liver. Large amounts of toxic porphyrins has caused rapid deterioration of his liver function leading to liver failure; which my brother has.
Tim has not been feeling well since November 2006. He lost his appetite and had severe abdominal pain and diarrhea. His mobility was gradually decreasing so that he had to stop his study. By the end of March this year his condition got worse. We went to Queen Mary Hospital on March 26 and he has been in the hospital now for one month. He is now in the Intensive Care Unit (ICU) of the hospital and is waiting for a hope for liver transplantation. His liver no longer functions. Aside from his severe liver failure, he has acquired pneumonia since a week after being in the hospital. His lungs are very weak now and breathing is assisted by an ventilator.
The underlying cause of my brother's disease is related to the bone marrow. A hematopoietic stem cell transplant (a bone marrow transplant) is necessarily to be done shortly after his liver transplantation. Liver transplant is of the utmost importance for now. As a family, we all are willing to do the live donation for him but unfortunately none of our livers is a proper match. Tim is in desperate need of a liver transplant! If you are willing to help this 23-year-old young man and donate part of your liver to him, please contact us at savingtim@gmail.com. Your decision could save the life of this young man and let him live with his family!
Tim's sister
Catherine
Health Criteria of Living Donor
No long-term drug taken
No other chronic illness, including psychological illness
No hepatitis
Blood type : B+ or O+
Age: 18 - 50
Can afford 6-8 week sick leave from work
Must gain support from family e.g. parent, wife/husband, etc (because they need to sign a consent)
Must fully understand the liver transplant operation and the potential risk
各位 要繼續努力!
回覆刪除主佑.
(雖然我不信奉任何宗教)
你好，自从看到这个网站以后，我天天都有上来看看最新的update。你们要加油啊，天送知道家人们朋友们都那么的支持他，他一定会撑下去的。愿上天保佑天送。: )
回覆刪除永不放棄..停住眼淚..鼓起勇氣!!
回覆刪除要加油牙天送!!
我地個個都支持你~
天送;
回覆刪除加油.....努力
每位愛您支持您的人相信您能做得到!
不要氣餒不要輕易放棄!
用您的求生意志去克服他!
不要令到愛您的家人朋友們失望!
前面重有二個大關肝臟和骨髓移植的機會等待著您!
希望您早日康復後去實現自己的理想和抱負!
祝願您平安渡過難關......早日康復!
一定要咬緊牙關加油!!你生命力好強!!千唔好放棄~雖然咁講有D奇怪，但我地大家都會支持你GA!!
回覆刪除