我和媽媽六時到醫院看細佬，到後看到在病房Ｘ－Ｒａｙ燈箱上有細佬腦素描的結果，我看到的是一個一個的圓圈在Ｘ－Ｒａｙ上，我一點兒都不懂，然而看到有很多醫生跟姑娘在討論，心裡面有點焦急，不知道是好還是壞，我在天送耳邊說，我聽完腦素描的結果後會告訴他。我們一直在病房陪著細佬，直到七時爸爸到達病房，我們三人一起到另外一個房間見醫生。大家坐下來，竺醫生跟我們說他一直跟進天送的情況，他平時會一天看細佬四次，他說他覺得今天天送有點不同，但是說不出是什麼，直到他看到這個腦素描的結果，他才肯定自己的感覺是對的。他對我們說：「根據腦素描的結果根據，我們發現天送左前腦葉的地方有一個約三厘米寬的瘀血，好像一個乒乓球的大小，這其實是腦中風，我們懷疑他是今天早上才發生的，所以我們留意到天送今日的左眼不怎樣打開。造成天送腦中風原因我們還沒肯定，可能是因為他的凝血指數因為差所引致，又或者是先天性血管畸形，我們再要找腦科醫生詳細了解。所有要做移植手術的病人，如有中風現像出現，我們都不能為他進行移植，因為我們擔心病人會繼續出血，所以肝臟移植一事要暫時停止。我們而家會繼續給天送血漿，希望出血的情況不會持續．．．．．．」
到八時左右，肝臟移植組的何姑娘到天送的病房送上慰問，何姑娘在最近的幾個星期都為天送找合適的捐肝者一事而忙個不停，她說我們一家已經為天送最後都找到這位善心人，她在星期四晚上替這位為善心人驗血，驗血結果都很合適，本身打算在明天安排善心人作其他的身體檢查，但無奈天送的腦的瘀血令他的病情再加上一關，「我也不知道應該說什麼，你們一家真的很了不起，因為給你們找到這位有心人，無奈天送的病情出現估計不到的變化，現在希望天送能夠爭氣，把病情逆轉過來。」
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關於天送 About Tim
- Saving Tim via Liver Transplantation
- 陳天送，２３歲，血型是Ｂ＋，喜歡攝影及電腦設計，曾就讀於ＣＩＴＹＵ及ＩＶＥ，因患上極罕見的遺傳病－紫質病，而迫使停學，於５月1３日病逝。 Tim Chan, 23 year old, loves photography and digital media design. He studied in City University of Hong Kong and Institute of Vocational Education (Kwun Tong). Due to the outbreak of his rare disease - Erythropoietic Protoprophyria (EPP), he stopped his study twice. He passed away on May 13.
器官捐贈的有關質料 About Organ Donation
病症相關資料 Useful Links to the Diseases
THE ONLY WAY TO SAFE HIS LIFE - A LIVER TRANSPLANT!
Dear all,
My brother, Tim Chan Tin-Sung, 23 year old, was diagnosed with Erythropoietic Protoprophyria (EPP) at the age of 20. It is a rare genetic disease characterized by photosensitivity. As a child, whenever he got home after an outing, his face, ears and hands swelled up. He had a burning pain all over his body, too. When my parents took him to the family doctors, they all said he was allergic to the soil or pollen. In September 2006, after he had a severe reaction and abdominal pain, he stayed in the hospital for 4 months and he was finally diagnosed with EPP.
EPP is due to an inherited deficiency of the enzyme ferrochelatase. Reduced activity of this enzyme causes a build-up of porphyrins accumulating in the liver. Large amounts of toxic porphyrins has caused rapid deterioration of his liver function leading to liver failure; which my brother has.
Tim has not been feeling well since November 2006. He lost his appetite and had severe abdominal pain and diarrhea. His mobility was gradually decreasing so that he had to stop his study. By the end of March this year his condition got worse. We went to Queen Mary Hospital on March 26 and he has been in the hospital now for one month. He is now in the Intensive Care Unit (ICU) of the hospital and is waiting for a hope for liver transplantation. His liver no longer functions. Aside from his severe liver failure, he has acquired pneumonia since a week after being in the hospital. His lungs are very weak now and breathing is assisted by an ventilator.
The underlying cause of my brother's disease is related to the bone marrow. A hematopoietic stem cell transplant (a bone marrow transplant) is necessarily to be done shortly after his liver transplantation. Liver transplant is of the utmost importance for now. As a family, we all are willing to do the live donation for him but unfortunately none of our livers is a proper match. Tim is in desperate need of a liver transplant! If you are willing to help this 23-year-old young man and donate part of your liver to him, please contact us at savingtim@gmail.com. Your decision could save the life of this young man and let him live with his family!
Tim's sister
Catherine
My brother, Tim Chan Tin-Sung, 23 year old, was diagnosed with Erythropoietic Protoprophyria (EPP) at the age of 20. It is a rare genetic disease characterized by photosensitivity. As a child, whenever he got home after an outing, his face, ears and hands swelled up. He had a burning pain all over his body, too. When my parents took him to the family doctors, they all said he was allergic to the soil or pollen. In September 2006, after he had a severe reaction and abdominal pain, he stayed in the hospital for 4 months and he was finally diagnosed with EPP.
EPP is due to an inherited deficiency of the enzyme ferrochelatase. Reduced activity of this enzyme causes a build-up of porphyrins accumulating in the liver. Large amounts of toxic porphyrins has caused rapid deterioration of his liver function leading to liver failure; which my brother has.
Tim has not been feeling well since November 2006. He lost his appetite and had severe abdominal pain and diarrhea. His mobility was gradually decreasing so that he had to stop his study. By the end of March this year his condition got worse. We went to Queen Mary Hospital on March 26 and he has been in the hospital now for one month. He is now in the Intensive Care Unit (ICU) of the hospital and is waiting for a hope for liver transplantation. His liver no longer functions. Aside from his severe liver failure, he has acquired pneumonia since a week after being in the hospital. His lungs are very weak now and breathing is assisted by an ventilator.
The underlying cause of my brother's disease is related to the bone marrow. A hematopoietic stem cell transplant (a bone marrow transplant) is necessarily to be done shortly after his liver transplantation. Liver transplant is of the utmost importance for now. As a family, we all are willing to do the live donation for him but unfortunately none of our livers is a proper match. Tim is in desperate need of a liver transplant! If you are willing to help this 23-year-old young man and donate part of your liver to him, please contact us at savingtim@gmail.com. Your decision could save the life of this young man and let him live with his family!
Tim's sister
Catherine
Health Criteria of Living Donor
No long-term drug taken
No other chronic illness, including psychological illness
No hepatitis
Blood type : B+ or O+
Age: 18 - 50
Can afford 6-8 week sick leave from work
Must gain support from family e.g. parent, wife/husband, etc (because they need to sign a consent)
Must fully understand the liver transplant operation and the potential risk
感恩~你們能找到一位有心人!
回覆刪除祝願天送的腦中風早日康復.
然後進行移植手術.
加油喔!
繼續為你們祈禱