5月4日，今天我和媽媽兩人去探天送，下午6時30分左右，盧寵茂教授來到病房跟我們說天送現在的情況，盧教授說正如他之前說天送的病有幾關要過，一是肺炎，二是換肝，三是換骨髓，現在天送的肺部已經比之前清了很多，他已經捱過了第一關，盧教授說天送能捱過這個肺炎，他也有點意外，因為它本身的肝功能已經很差，再加上肺炎，其實能經捱真的很難，現在他要面對第二關-換肝，他覺得細佬要盡快做這個手術，最好在這幾天裡面可以做到，如果不是，他現在的抵抗力很低，好容易會受到感染，到時候他能做到手術的機會就會更低。
之前有5位熱心市民表達捐肝助人意願，惟醫院跟捐贈者聯絡後，還沒有收到他們的回覆。我們一家再次公開呼籲有心捐肝者盡快跟我們或醫院聯絡。由於天送換肝後還要接受骨髓移植手術，其生存率比一般的換肝低，未符合輪候資格，所以他的病不能排在屍肝輪候冊上，除非有死者點名捐肝，否則只能作活體移植。希望善心人可點名捐出去世親人的肝臟給天送，遺愛人間。活體捐贈承受一定風險，故決心救人者，必定存有無私的愛心，天送正與時間競賽，希望奇蹟能降臨在弟弟身上，讓他的生命得以延續，並可接受骨髓移植手術，根治病源。
Catherine敬上
2009年5月4日
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關於天送 About Tim
- Saving Tim via Liver Transplantation
- 陳天送，２３歲，血型是Ｂ＋，喜歡攝影及電腦設計，曾就讀於ＣＩＴＹＵ及ＩＶＥ，因患上極罕見的遺傳病－紫質病，而迫使停學，於５月1３日病逝。 Tim Chan, 23 year old, loves photography and digital media design. He studied in City University of Hong Kong and Institute of Vocational Education (Kwun Tong). Due to the outbreak of his rare disease - Erythropoietic Protoprophyria (EPP), he stopped his study twice. He passed away on May 13.
器官捐贈的有關質料 About Organ Donation
病症相關資料 Useful Links to the Diseases
THE ONLY WAY TO SAFE HIS LIFE - A LIVER TRANSPLANT!
Dear all,
My brother, Tim Chan Tin-Sung, 23 year old, was diagnosed with Erythropoietic Protoprophyria (EPP) at the age of 20. It is a rare genetic disease characterized by photosensitivity. As a child, whenever he got home after an outing, his face, ears and hands swelled up. He had a burning pain all over his body, too. When my parents took him to the family doctors, they all said he was allergic to the soil or pollen. In September 2006, after he had a severe reaction and abdominal pain, he stayed in the hospital for 4 months and he was finally diagnosed with EPP.
EPP is due to an inherited deficiency of the enzyme ferrochelatase. Reduced activity of this enzyme causes a build-up of porphyrins accumulating in the liver. Large amounts of toxic porphyrins has caused rapid deterioration of his liver function leading to liver failure; which my brother has.
Tim has not been feeling well since November 2006. He lost his appetite and had severe abdominal pain and diarrhea. His mobility was gradually decreasing so that he had to stop his study. By the end of March this year his condition got worse. We went to Queen Mary Hospital on March 26 and he has been in the hospital now for one month. He is now in the Intensive Care Unit (ICU) of the hospital and is waiting for a hope for liver transplantation. His liver no longer functions. Aside from his severe liver failure, he has acquired pneumonia since a week after being in the hospital. His lungs are very weak now and breathing is assisted by an ventilator.
The underlying cause of my brother's disease is related to the bone marrow. A hematopoietic stem cell transplant (a bone marrow transplant) is necessarily to be done shortly after his liver transplantation. Liver transplant is of the utmost importance for now. As a family, we all are willing to do the live donation for him but unfortunately none of our livers is a proper match. Tim is in desperate need of a liver transplant! If you are willing to help this 23-year-old young man and donate part of your liver to him, please contact us at savingtim@gmail.com. Your decision could save the life of this young man and let him live with his family!
Tim's sister
Catherine
My brother, Tim Chan Tin-Sung, 23 year old, was diagnosed with Erythropoietic Protoprophyria (EPP) at the age of 20. It is a rare genetic disease characterized by photosensitivity. As a child, whenever he got home after an outing, his face, ears and hands swelled up. He had a burning pain all over his body, too. When my parents took him to the family doctors, they all said he was allergic to the soil or pollen. In September 2006, after he had a severe reaction and abdominal pain, he stayed in the hospital for 4 months and he was finally diagnosed with EPP.
EPP is due to an inherited deficiency of the enzyme ferrochelatase. Reduced activity of this enzyme causes a build-up of porphyrins accumulating in the liver. Large amounts of toxic porphyrins has caused rapid deterioration of his liver function leading to liver failure; which my brother has.
Tim has not been feeling well since November 2006. He lost his appetite and had severe abdominal pain and diarrhea. His mobility was gradually decreasing so that he had to stop his study. By the end of March this year his condition got worse. We went to Queen Mary Hospital on March 26 and he has been in the hospital now for one month. He is now in the Intensive Care Unit (ICU) of the hospital and is waiting for a hope for liver transplantation. His liver no longer functions. Aside from his severe liver failure, he has acquired pneumonia since a week after being in the hospital. His lungs are very weak now and breathing is assisted by an ventilator.
The underlying cause of my brother's disease is related to the bone marrow. A hematopoietic stem cell transplant (a bone marrow transplant) is necessarily to be done shortly after his liver transplantation. Liver transplant is of the utmost importance for now. As a family, we all are willing to do the live donation for him but unfortunately none of our livers is a proper match. Tim is in desperate need of a liver transplant! If you are willing to help this 23-year-old young man and donate part of your liver to him, please contact us at savingtim@gmail.com. Your decision could save the life of this young man and let him live with his family!
Tim's sister
Catherine
Health Criteria of Living Donor
No long-term drug taken
No other chronic illness, including psychological illness
No hepatitis
Blood type : B+ or O+
Age: 18 - 50
Can afford 6-8 week sick leave from work
Must gain support from family e.g. parent, wife/husband, etc (because they need to sign a consent)
Must fully understand the liver transplant operation and the potential risk
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回覆刪除天送：
回覆刪除你很了不起，這樣艱難的一關都給你征服了，可想而知你的意志有多強。繼續努力吧，所有關心你的人都在為你打氣啊！
祝府上各人身體健康
Sylvia Chan上
第一關給你過了,
回覆刪除第二,三關又如何難到你?
加油加油!堅持下去.努力'
why u, u ever ask the same question, why not you? death and dying is just a chapter of life. u got to make the best out of the remaining time. u have to tell him how much u love him and be strong in front of him. it is going to be a happy ending to him.
回覆刪除Don't know how to comfort or help. The only thing is to pass your message around. Hope somebody will help eventually.
回覆刪除Add oil... God bless you.
Eddy :)
雖然跟你們不相識
回覆刪除不過我爸爸同樣在醫院
家人相當擔心
希望主保守你們一家人
我都會為你們禱告
願主保守天送
加油!!!
I will start praying for Tim.
回覆刪除so sorry to hear that, but let's believe that Nothing is impossible to God.
um.....
回覆刪除我想試試
可以嗎?
但我自己系唔系b.o形都唔知
msn我啦
samson860913@hotmail.com
我都系同佢差唔多年紀
仲有好多野未做
幫倒咪幫囉
雖然我唔可以做到d咩,但係我好希望天送可以快d搵到佢合適ger肝,加油牙,天送,你一定得kar!頂住ah!好返之後要拍返一d好好ger作品放上呢個blog度同我地分享!加油!主會帶平安給你,要早日康復哦!!!
回覆刪除幫唔到咩手....唔知佢係咪基督徒，但都會為佢祈禱，希望佢會吉天相。一定要加油呀!!!!
回覆刪除Add oil ~~ There's always "Probability".....and "IMPOSSIBLE" IS NOTHING
回覆刪除"當信主耶穌,你和你一家都必得救。" ( 聖經使徒行傳16:31)
回覆刪除為你們祈禱﹐你們也可向天父祈禱。願主的平安與天送和你們一家同在!
你好，请帮我跟你弟弟说：“加油，神不会那么残忍，带走一个那么努力生活的人的。你要坚持，要相信奇迹。我相信奇迹会为有心人而出现的。祝福你。”
回覆刪除加油加油！！！
加油啊，你一定可以的，我也是學設計的IVE學生，我知道你的夢想也和我一樣成為出色的設計師，所以你要加油，快快好起來！我們一起努力！
回覆刪除天送现在怎样呢？有最新的消息吗？
回覆刪除