由於家人的反對，阿光最終未能答應捐贈肝臟。但希望還是有的！！我們現已初步聯絡了五位有心人，願意捐贈肝臟給天送。不過希望各位能為我們繼續呼籲，因為這五位有心人還沒有進行有關檢查，他們可能五位都是合適的捐贈者，但也可能全不是。因此，我們一家現在能為天送做的事情，就是繼續尋找更多的有心人，讓他有更大的機會取得合適的肝臟。
雖然天送現時還與肺炎搏鬥，要待痊癒後才可進行肝臟移植手術，但我們是不能怠慢的，因為他肺炎一好，就馬上要做手術。時間是不會等我們，但是我們一家也相信集大眾的力量, 天送最终必能找到合適的捐贈者，渡過今次這個難關!
我們在這裡再次懇請各位，如果你是B或O血型，而你願意捐肝救活天送的話，請盡快跟我們聯絡。我們的電郵是savingtim@gmail.com。
萬分感激！
陳天送家人敬上
2009年4月21日
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關於天送 About Tim
- Saving Tim via Liver Transplantation
- 陳天送，２３歲，血型是Ｂ＋，喜歡攝影及電腦設計，曾就讀於ＣＩＴＹＵ及ＩＶＥ，因患上極罕見的遺傳病－紫質病，而迫使停學，於５月1３日病逝。 Tim Chan, 23 year old, loves photography and digital media design. He studied in City University of Hong Kong and Institute of Vocational Education (Kwun Tong). Due to the outbreak of his rare disease - Erythropoietic Protoprophyria (EPP), he stopped his study twice. He passed away on May 13.
器官捐贈的有關質料 About Organ Donation
病症相關資料 Useful Links to the Diseases
THE ONLY WAY TO SAFE HIS LIFE - A LIVER TRANSPLANT!
Dear all,
My brother, Tim Chan Tin-Sung, 23 year old, was diagnosed with Erythropoietic Protoprophyria (EPP) at the age of 20. It is a rare genetic disease characterized by photosensitivity. As a child, whenever he got home after an outing, his face, ears and hands swelled up. He had a burning pain all over his body, too. When my parents took him to the family doctors, they all said he was allergic to the soil or pollen. In September 2006, after he had a severe reaction and abdominal pain, he stayed in the hospital for 4 months and he was finally diagnosed with EPP.
EPP is due to an inherited deficiency of the enzyme ferrochelatase. Reduced activity of this enzyme causes a build-up of porphyrins accumulating in the liver. Large amounts of toxic porphyrins has caused rapid deterioration of his liver function leading to liver failure; which my brother has.
Tim has not been feeling well since November 2006. He lost his appetite and had severe abdominal pain and diarrhea. His mobility was gradually decreasing so that he had to stop his study. By the end of March this year his condition got worse. We went to Queen Mary Hospital on March 26 and he has been in the hospital now for one month. He is now in the Intensive Care Unit (ICU) of the hospital and is waiting for a hope for liver transplantation. His liver no longer functions. Aside from his severe liver failure, he has acquired pneumonia since a week after being in the hospital. His lungs are very weak now and breathing is assisted by an ventilator.
The underlying cause of my brother's disease is related to the bone marrow. A hematopoietic stem cell transplant (a bone marrow transplant) is necessarily to be done shortly after his liver transplantation. Liver transplant is of the utmost importance for now. As a family, we all are willing to do the live donation for him but unfortunately none of our livers is a proper match. Tim is in desperate need of a liver transplant! If you are willing to help this 23-year-old young man and donate part of your liver to him, please contact us at savingtim@gmail.com. Your decision could save the life of this young man and let him live with his family!
Tim's sister
Catherine
My brother, Tim Chan Tin-Sung, 23 year old, was diagnosed with Erythropoietic Protoprophyria (EPP) at the age of 20. It is a rare genetic disease characterized by photosensitivity. As a child, whenever he got home after an outing, his face, ears and hands swelled up. He had a burning pain all over his body, too. When my parents took him to the family doctors, they all said he was allergic to the soil or pollen. In September 2006, after he had a severe reaction and abdominal pain, he stayed in the hospital for 4 months and he was finally diagnosed with EPP.
EPP is due to an inherited deficiency of the enzyme ferrochelatase. Reduced activity of this enzyme causes a build-up of porphyrins accumulating in the liver. Large amounts of toxic porphyrins has caused rapid deterioration of his liver function leading to liver failure; which my brother has.
Tim has not been feeling well since November 2006. He lost his appetite and had severe abdominal pain and diarrhea. His mobility was gradually decreasing so that he had to stop his study. By the end of March this year his condition got worse. We went to Queen Mary Hospital on March 26 and he has been in the hospital now for one month. He is now in the Intensive Care Unit (ICU) of the hospital and is waiting for a hope for liver transplantation. His liver no longer functions. Aside from his severe liver failure, he has acquired pneumonia since a week after being in the hospital. His lungs are very weak now and breathing is assisted by an ventilator.
The underlying cause of my brother's disease is related to the bone marrow. A hematopoietic stem cell transplant (a bone marrow transplant) is necessarily to be done shortly after his liver transplantation. Liver transplant is of the utmost importance for now. As a family, we all are willing to do the live donation for him but unfortunately none of our livers is a proper match. Tim is in desperate need of a liver transplant! If you are willing to help this 23-year-old young man and donate part of your liver to him, please contact us at savingtim@gmail.com. Your decision could save the life of this young man and let him live with his family!
Tim's sister
Catherine
Health Criteria of Living Donor
No long-term drug taken
No other chronic illness, including psychological illness
No hepatitis
Blood type : B+ or O+
Age: 18 - 50
Can afford 6-8 week sick leave from work
Must gain support from family e.g. parent, wife/husband, etc (because they need to sign a consent)
Must fully understand the liver transplant operation and the potential risk
作者已經移除這則留言。
回覆刪除雪英你今天有沒有去探望弟弟?
回覆刪除你去探望弟弟時記得在他耳邊幫我鼓勵他
你也要小心身體呀
代我問候你的家人吧
祝天送早日找到合適的肝藏
林老師上
林老師
回覆刪除除了工作外，只要時間許可，我們一家也定必探望天送．因為除了盡力幫他呼籲尋找有心人外，我們唯一可以做到的就是默默的守在他身旁，不斷的鼓勵他．
謝謝你的關心！我們一家會保重身體，因為我們還要和天送過關斬障．你不用擔心．
雪英上