我們又跟另一位有心人聯絡上。他經過深思熟慮和跟家人商量後，決定將自己部份的肝臟捐贈給天送。明天早上他會到醫院跟醫生見面。雖然能有有心人跟醫生見面是向目標走近一步，但是一切還是言之尚早，因為還有不同的事前檢查要做，還不知道兩人肝臟的大小是否吻合，還不知道天送能否承受手術的衝擊。不過能走前一步，總比原地踏步好。希望這次能成事，希望接下來一切會順利，真的「明天會更好」！
天送，我們一起努力吧！我們知道，你必定是十分辛苦的。全身插滿大大小小的喉管，整天動彈不得，卧病在床。但是我們也知道，只要不放棄，便有著數百萬個可能。因此，再困難也要捱過這一關。既然黑夜已降臨，黎明離我們也不遠了！
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關於天送 About Tim
- Saving Tim via Liver Transplantation
- 陳天送，２３歲，血型是Ｂ＋，喜歡攝影及電腦設計，曾就讀於ＣＩＴＹＵ及ＩＶＥ，因患上極罕見的遺傳病－紫質病，而迫使停學，於５月1３日病逝。 Tim Chan, 23 year old, loves photography and digital media design. He studied in City University of Hong Kong and Institute of Vocational Education (Kwun Tong). Due to the outbreak of his rare disease - Erythropoietic Protoprophyria (EPP), he stopped his study twice. He passed away on May 13.
器官捐贈的有關質料 About Organ Donation
病症相關資料 Useful Links to the Diseases
THE ONLY WAY TO SAFE HIS LIFE - A LIVER TRANSPLANT!
Dear all,
My brother, Tim Chan Tin-Sung, 23 year old, was diagnosed with Erythropoietic Protoprophyria (EPP) at the age of 20. It is a rare genetic disease characterized by photosensitivity. As a child, whenever he got home after an outing, his face, ears and hands swelled up. He had a burning pain all over his body, too. When my parents took him to the family doctors, they all said he was allergic to the soil or pollen. In September 2006, after he had a severe reaction and abdominal pain, he stayed in the hospital for 4 months and he was finally diagnosed with EPP.
EPP is due to an inherited deficiency of the enzyme ferrochelatase. Reduced activity of this enzyme causes a build-up of porphyrins accumulating in the liver. Large amounts of toxic porphyrins has caused rapid deterioration of his liver function leading to liver failure; which my brother has.
Tim has not been feeling well since November 2006. He lost his appetite and had severe abdominal pain and diarrhea. His mobility was gradually decreasing so that he had to stop his study. By the end of March this year his condition got worse. We went to Queen Mary Hospital on March 26 and he has been in the hospital now for one month. He is now in the Intensive Care Unit (ICU) of the hospital and is waiting for a hope for liver transplantation. His liver no longer functions. Aside from his severe liver failure, he has acquired pneumonia since a week after being in the hospital. His lungs are very weak now and breathing is assisted by an ventilator.
The underlying cause of my brother's disease is related to the bone marrow. A hematopoietic stem cell transplant (a bone marrow transplant) is necessarily to be done shortly after his liver transplantation. Liver transplant is of the utmost importance for now. As a family, we all are willing to do the live donation for him but unfortunately none of our livers is a proper match. Tim is in desperate need of a liver transplant! If you are willing to help this 23-year-old young man and donate part of your liver to him, please contact us at savingtim@gmail.com. Your decision could save the life of this young man and let him live with his family!
Tim's sister
Catherine
My brother, Tim Chan Tin-Sung, 23 year old, was diagnosed with Erythropoietic Protoprophyria (EPP) at the age of 20. It is a rare genetic disease characterized by photosensitivity. As a child, whenever he got home after an outing, his face, ears and hands swelled up. He had a burning pain all over his body, too. When my parents took him to the family doctors, they all said he was allergic to the soil or pollen. In September 2006, after he had a severe reaction and abdominal pain, he stayed in the hospital for 4 months and he was finally diagnosed with EPP.
EPP is due to an inherited deficiency of the enzyme ferrochelatase. Reduced activity of this enzyme causes a build-up of porphyrins accumulating in the liver. Large amounts of toxic porphyrins has caused rapid deterioration of his liver function leading to liver failure; which my brother has.
Tim has not been feeling well since November 2006. He lost his appetite and had severe abdominal pain and diarrhea. His mobility was gradually decreasing so that he had to stop his study. By the end of March this year his condition got worse. We went to Queen Mary Hospital on March 26 and he has been in the hospital now for one month. He is now in the Intensive Care Unit (ICU) of the hospital and is waiting for a hope for liver transplantation. His liver no longer functions. Aside from his severe liver failure, he has acquired pneumonia since a week after being in the hospital. His lungs are very weak now and breathing is assisted by an ventilator.
The underlying cause of my brother's disease is related to the bone marrow. A hematopoietic stem cell transplant (a bone marrow transplant) is necessarily to be done shortly after his liver transplantation. Liver transplant is of the utmost importance for now. As a family, we all are willing to do the live donation for him but unfortunately none of our livers is a proper match. Tim is in desperate need of a liver transplant! If you are willing to help this 23-year-old young man and donate part of your liver to him, please contact us at savingtim@gmail.com. Your decision could save the life of this young man and let him live with his family!
Tim's sister
Catherine
Health Criteria of Living Donor
No long-term drug taken
No other chronic illness, including psychological illness
No hepatitis
Blood type : B+ or O+
Age: 18 - 50
Can afford 6-8 week sick leave from work
Must gain support from family e.g. parent, wife/husband, etc (because they need to sign a consent)
Must fully understand the liver transplant operation and the potential risk
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