昨天醫生替天送在喉嚨開了一個孔，約一個五元硬幣大，目的是方便醫護人員照顧他。醫生把提供氧氣的喉管直駁到喉嚨這個孔，縮短了替天送從肺部吸痰及氧氣到達肺部的距離。另外，由於口中沒有喉管，避免了喉管對聲帶所做成的勞損及唾液積聚在口腔所產生的衛生問題。亦防止天送注射麻醉藥後咬緊喉管令氧氣無法到達肺部的危險。
今天中午探望天送時，微生學學科醫生表示天送的肺炎有些微好轉的跡象，接下來他們會替天送做一些跟進事宜, 希望能幫助他盡快解決肺炎的問題。他說由於天送持續發燒多天，雖然已經抽痰種菌，但是並無結果。因此醫生們決定暫停使用抗生素數天，從而找出發燒的原因是因為肺部還有細菌或是病毒，還是用藥後所帶來的副作用。我們真的希望醫生能快點找出天送發燒的原因，令他早點退燒，肺炎早點痊癒，可以早點進行肝臟移植手術，之後早點進行骨髓移植手術，早點康復，早點過着跟其他人一樣的平凡生活。
黃昏探望天送時，不知天送是否洗血後太疲累，半醒沒醒似的，跟他說話也沒有甚麼反應。看見他心中不禁感到很難過，喉管插滿全身，傷痕處處，試問有誰看見自己的親人這樣會不感心痛呢？天送，你要努力，你要堅持。日子雖然是艱難，這是無可否認的，但是我們一家，你的朋友、同學，甚至與你並不認識的人，也在支持你。我們是跟你在一起的，你不是孤獨作戰，只要不言敗，就有希望。
最後, 希望大家繼續幫忙呼籲, 希望有更多有心人出現 ，讓天送多會一個機，我們一家多一線希望。謝謝！
天送一家上
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關於天送 About Tim
- Saving Tim via Liver Transplantation
- 陳天送，２３歲，血型是Ｂ＋，喜歡攝影及電腦設計，曾就讀於ＣＩＴＹＵ及ＩＶＥ，因患上極罕見的遺傳病－紫質病，而迫使停學，於５月1３日病逝。 Tim Chan, 23 year old, loves photography and digital media design. He studied in City University of Hong Kong and Institute of Vocational Education (Kwun Tong). Due to the outbreak of his rare disease - Erythropoietic Protoprophyria (EPP), he stopped his study twice. He passed away on May 13.
器官捐贈的有關質料 About Organ Donation
病症相關資料 Useful Links to the Diseases
THE ONLY WAY TO SAFE HIS LIFE - A LIVER TRANSPLANT!
Dear all,
My brother, Tim Chan Tin-Sung, 23 year old, was diagnosed with Erythropoietic Protoprophyria (EPP) at the age of 20. It is a rare genetic disease characterized by photosensitivity. As a child, whenever he got home after an outing, his face, ears and hands swelled up. He had a burning pain all over his body, too. When my parents took him to the family doctors, they all said he was allergic to the soil or pollen. In September 2006, after he had a severe reaction and abdominal pain, he stayed in the hospital for 4 months and he was finally diagnosed with EPP.
EPP is due to an inherited deficiency of the enzyme ferrochelatase. Reduced activity of this enzyme causes a build-up of porphyrins accumulating in the liver. Large amounts of toxic porphyrins has caused rapid deterioration of his liver function leading to liver failure; which my brother has.
Tim has not been feeling well since November 2006. He lost his appetite and had severe abdominal pain and diarrhea. His mobility was gradually decreasing so that he had to stop his study. By the end of March this year his condition got worse. We went to Queen Mary Hospital on March 26 and he has been in the hospital now for one month. He is now in the Intensive Care Unit (ICU) of the hospital and is waiting for a hope for liver transplantation. His liver no longer functions. Aside from his severe liver failure, he has acquired pneumonia since a week after being in the hospital. His lungs are very weak now and breathing is assisted by an ventilator.
The underlying cause of my brother's disease is related to the bone marrow. A hematopoietic stem cell transplant (a bone marrow transplant) is necessarily to be done shortly after his liver transplantation. Liver transplant is of the utmost importance for now. As a family, we all are willing to do the live donation for him but unfortunately none of our livers is a proper match. Tim is in desperate need of a liver transplant! If you are willing to help this 23-year-old young man and donate part of your liver to him, please contact us at savingtim@gmail.com. Your decision could save the life of this young man and let him live with his family!
Tim's sister
Catherine
My brother, Tim Chan Tin-Sung, 23 year old, was diagnosed with Erythropoietic Protoprophyria (EPP) at the age of 20. It is a rare genetic disease characterized by photosensitivity. As a child, whenever he got home after an outing, his face, ears and hands swelled up. He had a burning pain all over his body, too. When my parents took him to the family doctors, they all said he was allergic to the soil or pollen. In September 2006, after he had a severe reaction and abdominal pain, he stayed in the hospital for 4 months and he was finally diagnosed with EPP.
EPP is due to an inherited deficiency of the enzyme ferrochelatase. Reduced activity of this enzyme causes a build-up of porphyrins accumulating in the liver. Large amounts of toxic porphyrins has caused rapid deterioration of his liver function leading to liver failure; which my brother has.
Tim has not been feeling well since November 2006. He lost his appetite and had severe abdominal pain and diarrhea. His mobility was gradually decreasing so that he had to stop his study. By the end of March this year his condition got worse. We went to Queen Mary Hospital on March 26 and he has been in the hospital now for one month. He is now in the Intensive Care Unit (ICU) of the hospital and is waiting for a hope for liver transplantation. His liver no longer functions. Aside from his severe liver failure, he has acquired pneumonia since a week after being in the hospital. His lungs are very weak now and breathing is assisted by an ventilator.
The underlying cause of my brother's disease is related to the bone marrow. A hematopoietic stem cell transplant (a bone marrow transplant) is necessarily to be done shortly after his liver transplantation. Liver transplant is of the utmost importance for now. As a family, we all are willing to do the live donation for him but unfortunately none of our livers is a proper match. Tim is in desperate need of a liver transplant! If you are willing to help this 23-year-old young man and donate part of your liver to him, please contact us at savingtim@gmail.com. Your decision could save the life of this young man and let him live with his family!
Tim's sister
Catherine
Health Criteria of Living Donor
No long-term drug taken
No other chronic illness, including psychological illness
No hepatitis
Blood type : B+ or O+
Age: 18 - 50
Can afford 6-8 week sick leave from work
Must gain support from family e.g. parent, wife/husband, etc (because they need to sign a consent)
Must fully understand the liver transplant operation and the potential risk
雪英:
回覆刪除每天我都有看你們的網誌
今天亦知道天送的身體有好轉
雖然我幫不上什麼忙
但我每天也會為天送祈禱
求主祝福天送.
求主送給天送一個奇蹟
林老師上
只要有希望
回覆刪除奇蹟都會出現
要繼續努力堅持下去!
我會支持你們
天送、天送家人:
回覆刪除或許會想要放棄
痛苦得不得了的時候
喘息的時候
請記起
即使此刻身在夜裡
你知道嗎?
你絕不是孤單一個人的
有許多許多微光圍繞您
願意給您支持、給您力量、給您勇氣
只希望您會笑著走下去
黎明之前
總要經過最深沉的黑夜
再忍耐多一陣子 …
一定會等到破曉的！
要常存盼望喔！
God bless you, pray for you :' )