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關於天送 About Tim
- Saving Tim via Liver Transplantation
- 陳天送，２３歲，血型是Ｂ＋，喜歡攝影及電腦設計，曾就讀於ＣＩＴＹＵ及ＩＶＥ，因患上極罕見的遺傳病－紫質病，而迫使停學，於５月1３日病逝。 Tim Chan, 23 year old, loves photography and digital media design. He studied in City University of Hong Kong and Institute of Vocational Education (Kwun Tong). Due to the outbreak of his rare disease - Erythropoietic Protoprophyria (EPP), he stopped his study twice. He passed away on May 13.
器官捐贈的有關質料 About Organ Donation
病症相關資料 Useful Links to the Diseases
THE ONLY WAY TO SAFE HIS LIFE - A LIVER TRANSPLANT!
Dear all,
My brother, Tim Chan Tin-Sung, 23 year old, was diagnosed with Erythropoietic Protoprophyria (EPP) at the age of 20. It is a rare genetic disease characterized by photosensitivity. As a child, whenever he got home after an outing, his face, ears and hands swelled up. He had a burning pain all over his body, too. When my parents took him to the family doctors, they all said he was allergic to the soil or pollen. In September 2006, after he had a severe reaction and abdominal pain, he stayed in the hospital for 4 months and he was finally diagnosed with EPP.
EPP is due to an inherited deficiency of the enzyme ferrochelatase. Reduced activity of this enzyme causes a build-up of porphyrins accumulating in the liver. Large amounts of toxic porphyrins has caused rapid deterioration of his liver function leading to liver failure; which my brother has.
Tim has not been feeling well since November 2006. He lost his appetite and had severe abdominal pain and diarrhea. His mobility was gradually decreasing so that he had to stop his study. By the end of March this year his condition got worse. We went to Queen Mary Hospital on March 26 and he has been in the hospital now for one month. He is now in the Intensive Care Unit (ICU) of the hospital and is waiting for a hope for liver transplantation. His liver no longer functions. Aside from his severe liver failure, he has acquired pneumonia since a week after being in the hospital. His lungs are very weak now and breathing is assisted by an ventilator.
The underlying cause of my brother's disease is related to the bone marrow. A hematopoietic stem cell transplant (a bone marrow transplant) is necessarily to be done shortly after his liver transplantation. Liver transplant is of the utmost importance for now. As a family, we all are willing to do the live donation for him but unfortunately none of our livers is a proper match. Tim is in desperate need of a liver transplant! If you are willing to help this 23-year-old young man and donate part of your liver to him, please contact us at savingtim@gmail.com. Your decision could save the life of this young man and let him live with his family!
Tim's sister
Catherine
My brother, Tim Chan Tin-Sung, 23 year old, was diagnosed with Erythropoietic Protoprophyria (EPP) at the age of 20. It is a rare genetic disease characterized by photosensitivity. As a child, whenever he got home after an outing, his face, ears and hands swelled up. He had a burning pain all over his body, too. When my parents took him to the family doctors, they all said he was allergic to the soil or pollen. In September 2006, after he had a severe reaction and abdominal pain, he stayed in the hospital for 4 months and he was finally diagnosed with EPP.
EPP is due to an inherited deficiency of the enzyme ferrochelatase. Reduced activity of this enzyme causes a build-up of porphyrins accumulating in the liver. Large amounts of toxic porphyrins has caused rapid deterioration of his liver function leading to liver failure; which my brother has.
Tim has not been feeling well since November 2006. He lost his appetite and had severe abdominal pain and diarrhea. His mobility was gradually decreasing so that he had to stop his study. By the end of March this year his condition got worse. We went to Queen Mary Hospital on March 26 and he has been in the hospital now for one month. He is now in the Intensive Care Unit (ICU) of the hospital and is waiting for a hope for liver transplantation. His liver no longer functions. Aside from his severe liver failure, he has acquired pneumonia since a week after being in the hospital. His lungs are very weak now and breathing is assisted by an ventilator.
The underlying cause of my brother's disease is related to the bone marrow. A hematopoietic stem cell transplant (a bone marrow transplant) is necessarily to be done shortly after his liver transplantation. Liver transplant is of the utmost importance for now. As a family, we all are willing to do the live donation for him but unfortunately none of our livers is a proper match. Tim is in desperate need of a liver transplant! If you are willing to help this 23-year-old young man and donate part of your liver to him, please contact us at savingtim@gmail.com. Your decision could save the life of this young man and let him live with his family!
Tim's sister
Catherine
Health Criteria of Living Donor
No long-term drug taken
No other chronic illness, including psychological illness
No hepatitis
Blood type : B+ or O+
Age: 18 - 50
Can afford 6-8 week sick leave from work
Must gain support from family e.g. parent, wife/husband, etc (because they need to sign a consent)
Must fully understand the liver transplant operation and the potential risk
祝你細佬好番喇^^正所為好心有好報~
回覆刪除祝你細佬好番
回覆刪除願主保守你弟弟的平安
回覆刪除祝他早日康復
你好ar
回覆刪除我雖然不認識你,但在網上看到你弟弟的情況後,想在這裡為他打打氣!
天送;
你要加油,因為有好多人係到為你加油,打氣,所以你都要爭氣,我同屋企人都會為你祝福的........
加油ar......唔好放棄ar.......
你好!
回覆刪除看了報導,得知你的網頁
在網上看到你弟弟的情況後
直到來到這,看到很多有心人為你們一家人打氣
我也很想為你們一家人打打氣!
為天送加加油~! 為他作出小小的支持and鼓勵
人的一生經常會遇到不同程度的困難
這個關口位總有難破的地方
但..只要我們堅持面對,就一定可以打破壞的局面
現在的天送正正面對他人生最大的關口
不過相信他不會就此放棄
因為他的身邊有家人.朋友.香港的市民支持和鼓勵他
天送:你的家人永遠會對你不離不棄
堅強等待新的肝臟,為人生畫上新的開引號
我們等待一個新的你..!!
與主永遠留守在你身邊.
我會搵埋我既教會弟兄姊妹為妳同妳弟弟祈禱^^
回覆刪除要樂觀面對呀^^凡是有盼望
你好呀, 我係中文大學係美國交流的學生.
回覆刪除我在報章上看到你弟弟的病情, 在此祝願你弟弟早日康復.
希望那位"阿光"的, 可以幫到你的弟弟.
在此也希望他願意捐出.
你也要支撐下去呀!
作者已經移除這則留言。
回覆刪除請問AB+的可以嗎?
回覆刪除我不是乙型肝炎帶菌者, 而且脊髓檢查一切正常。我年齡跟天送一樣。我也已經清楚明白捐肝後可能帶來的問題。
同樣作為病人, 我已久病厭世, 所以不會遺憾, 希望能幫上忙。
AB+型是不脗合，因为他的血型是B型.但是多谢你的热心！
回覆刪除天送的大家姐
Could people with O pos blood type donate liver to your bro?
回覆刪除Thanks!
~Joanna T.
yes, they could. Please contact us at savingtim@gmail.com
回覆刪除